About Us:
The Cornelia de Lange Syndrome Foundation is a family support organization that exists to ensure early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lives.
Where we're located:
Cornelia de Lange Syndrome Foundation
302 West Main St.
Avon, CT 06001